Some experiences of a Land Surveyor with Macular Degeneration ~ growing an information resource for better future eyesight outcomes.

Regeneration ~ not degeneration


compassion               creativity               courage

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Caution alert ~ Dear reader, this narrative is about vision loss.  Should you find this distressing, please leave this page.  I also am stepping out of my personal comfort zone in writing and publishing this article.

The first port of call for any eyesight concern is always the medical professional.

The primary rationale of this journal entry is to plant a seed for the development of an organic knowledge base, in the public interest, specifically for probable future cures for the wet form of Macular Degeneration.  Eyesight malfunctions are numerous, and this journal entry is specific to the wet form of Macular Degeneration only.

My commentary is from the perspective of a non-medical layperson, who has experienced wet Macular Degeneration and it’s profound impacts for the past twenty years.  Again, my purpose is to seek out information for the benefit of all, of the latest developments with respect to the medical treatment of wet Macular Degeneration.  Relevant contributions addressing the theme of this page, would be most welcome.

How to instantly lose the best part of your eyesight, with no current prospect of a recovery

A very basic explanation of the vision process is firstly required.  One’s eyesight consists of two primary components – peripheral vision and macular vision.  Fine accuracy vision is provided by the macular, which enables one to read normally and view detail.

Out of the blue, twenty years ago, at aged 47 years, I lost the central macular vision of my right eye in an instant and was introduced to the world of Ophthalmologists and the terminology, the wet form of Macular Degeneration.  Medical treatment available at that time, did not recover my lost central sight.  Subsequent emphasis was directed to preserve the healthy eyesight of my good left eye.  I was able to continue to work successfully as a professional Land Surveyor.

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Out of the blue ~ Round 2, down for the count

My greatest fear was that this could happen to me again.  After twenty years of constant monitoring and checking of my good left eye by Ophthalmologists, my dreaded fear happened suddenly in late 2012, and again, I lost the central vision in my good healthy eye to the wet form of Macular Degeneration.  The wet form of Macular Degeneration is precipitated by a blood vessel eruption or leakage in the retina, which may cause irrepairable damage to the macular, resulting in central vision loss.  On this second occasion, the haemorrhage occurred under the retina.

Although the blood vessel haemorrhages were twenty years apart, medical treatments undertaken, inclusive of intraocular gas applications, were almost identical.  The new exceptions being in 2012/2013, the use of laser retinal scanning imagery and follow-up injections of Lucentis into my left eye.  In my case, leading to no vision improvement in this eye.

For me currently, and as it was twenty years ago, there is no cure to recover this lost vision.  If I’m  incorrect in my statement, I and many others would gladly like to be advised of an available treatment solution.  In my situation, because of family history, medical experts concur that I had a genetic predisposition to the wet form of Macular Degeneration.

My central area of vision for both eyes is obscured, replaced by a featureless grey smudge, with no visual precision – just a blur.  Letters and words cannot be identified.  The remainder of my peripheral vision can identify lines of text, however they cannot be read by me.  Images that I can see are blurry, distorted, sometimes with parts missing, with no sharp focus.

For me, the exponential domino effect of not being able to read in everyday living, has had the most profound impacts.  My passion to practice as a Consultant Land Surveyor has been stopped stone cold.

It’s not lights out ~ what’s next for tomorrow

Ophthalmologists, optometrists and orthoptists have advised me that there is no current cure to recover vision loss, caused by the wet form of  Macular Degeneration.  A damaged or atrophied macular (end stage disciform scarring and geographic atrophy) does not necessarily imply “lights out” – as put to me by one medical expert.  In my case, some peripheral vision remains, facilitating a reduced eyesight.  Unlike cataract removal surgery and the wonderful clear lens replacement, there is no universal plug-in or external optical fix for a damaged macular – not just yet.

A breakthrough in vision restoration for the future, may lie in the direction of a much sought after cell regenerative process.  Regenerative, meaning the repairing of an eye component part, that the body cannot repair naturally.  My layman’s speculation is that a practical successful treatment for wet Macular Degeneration, resulting in correct vision recovery, is more than 10 years away. On behalf of the wider affected community, I dearly hope that I’m wrong.

Key information links

Eye on the Cure

My Macular Degeneration Journey

eSight ~ digital eyewear for people with low vision

Eye Conditions

A current organic knowledge base in chronological order ~ seeking future treatment options for wet Macular Degeneration ~ see 84 links

Macular Degeneration: A stem cell treatment – video, a fair explanation

New Research: Gene Editing as a Potential Treatment for Wet Macular Degeneration

Legally blind ~ The Blind Spot ~ video

A Demonstration of the IrisVision Electronic Glasses

Japanese man is first to receive ‘reprogrammed’ stem cells from another person

How to use a USB microscope for a reading aid ~ video

Winner: GiveVision, Stan Karpenko, London

Patients Lose Sight After Stem Cells Are Injected Into Their Eyes

Macular Disease Foundation Australia – Extract Research Update, December 2016

EYE HOPE  ~ a site for sore eyes ~ curated by Reid Johnson, Seattle, USA

ORCAM – See for yourself

The Stem Cellar

Dry AMD Treatment’s “major achievement”

Basic Stem Cell Terminology

Stem cell cure for blindness tested – BBC News

NuEyes

Osterhout Design Group Teams with NuEyes for Solution to Help Those with Low Vision

Skin-To-Eye Stem Cell Transplant Partially Restores Eyesight Of Woman With Age-Related Macular Degeneration

Japanese scientists have used skin cells to restore a patient’s vision for the first time

‘Miracle’ cells could cure blindness

CRISPR Used to Repair Blindness-causing Genetic Defect in Patient-derived Stem Cells

My macular vision loss strategies ~ 2016

Cautionary comments concerning stem cell therapy and macular degeneration

Stem Cell Trial Aims to Cure Age-Related Macular Degeneration

Restoring vision with stem cells

RXI-109 May Reduce Retinal Scarring

‘Big step forward’ in new treatment for age-related macular degeneration

Restoring vision with stem cells

Stem cells help a local blind man see

Restoring vision with stem cells

Stem cell op could bring back sight for millions: UK breakthrough

A New Treatment for Macular Degeneration

Hope for stem cell therapy in macular degeneration

Faulty Immune Cells May be a Cause of Vision Loss in Wet Macular Degeneration

Are stem cells the future for treating macular degeneration?

Pivotal Clinical Trial Program Design for Stargardt’s Macular Degeneration ~ Ocata Therapeutics

Many Stem Cell Clinical Trials for Macular Degeneration

Blindness cure is in sight

Stem Cells Allow Nearly Blind Patients to See

Successful retina transplant sparks hope

Intra Ocular Lens AMD – Hubble Implant

Stem Cell Trial Yields Surprising Results

Hope for blind as scientists find stem cell reservoir in human eye

First lab grown stem cell implanted to treat macular degeneration

MIT finger device reads to the blind in real time

Summary of Research and Developments, 2013-2014

Stem-Cell Treatment for Blindness Moving Through Patient Testing

Scientists make major breakthrough in Age-Related Macular Degeneration therapy

A Continuing Clinical Trial for Dry Age-Related Macular Degeneration

Stem Cells Transplants Restore Sight to Blind Mice

Macular degeneration: Incurable, but progress being made

Nano innovation could mean eye injections are a thing of the past

Eccentric Viewing in Central Vision Field Loss, CFL ~ pdf

Review of the MD evReader by Robert Prikulis ~ pdf

New iPad app for people with sight loss

MD evReader App ~ You Tube

Stem Cell Trial Enrolling Patients

Gene Therapy May Help Against Rare Blinding Disease

Cells programmed back to embryonic state using acid bath may provide way to grow new organs

Blindness Cure Hope: Genetically Modified Virus Restores Sight in Choroideremia Patients

The Day I Got My Sight Back ~ BBC documentary video 2013

Scientists ‘print’ new eye cells

New hope for patients with macular degeneration

Stem Cell Treatment ~ Research Update December 2013, MD Foundation Australia

Macular Disease Foundation Australia

Webvision ~ Age-Related Macular Degeneration (AMD) by Gregory S. Hageman

Potential topical treatment for macular degeneration

New Treatment For Dry & Wet Macular Degeneration Shows Great Promise

The London Project to Cure Blindness

Historic Japan Stem Cell Trial Approved

‘Big leap’ towards curing blindness in stem cell study

Glasses could correct eyesight of macular degeneration sufferers

Bioengineered virus will improve gene therapy for blinding eye

Video ~ New lease on sight ~ Israeli start-up gives visually impaired a way to read

Bionic eye prototype unveiled by Victorian scientists and designers, Monash University

Stem-cell treatment restores sight to blind man ~ New Scientist – Health

The bionic eye – how does it work ? ~ Bionic Vision Australia

E-Scoop and Life After Vision Loss for Patients Suffering With Macular Degeneration

E-Scoop and Doctor Writes Guide for Macular Degeneration Eyeglasses

Vision Australia ~ blindness and low vision services

Your links, emails and comments are welcome.

Relevant submitted information will be published on this page.

Help grow an information resource for better treatment outcomes for Macular Degeneration.

Email Robert

with my gratitude to Gillian, Sam and Tee

regeneration